Through my newspaper job, I’ve been exposed to the never-ending stories of parents of ill children. I spent time with the parents of a baby with a serious lung condition who had so far spent the first seven months of her young life in a neonatal-intensive care unit. More recently, I met the parents of a young boy with cystic fibrosis, a chronic inherited disease. His life expectancy is 37 years old. But hope, through advancements in medical treatment, is on the horizon.


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